Cystinosis Ireland

Cystinosis Ireland is an Irish non-profit organization dedicated to supporting research and fostering collaboration for the ultra-rare disease of cystinosis through workshops, conferences, and international networking. The headquarters location is not specified on the website.

Here are key aspects of the company:

• Industries: The organization focuses on the ultra-rare disease of cystinosis by hosting interactive forums for researchers to share knowledge and explore new treatment approaches.
• Innovation: Cystinosis Ireland supports groundbreaking research, such as the development of the first human cellular model to study cystinosis myopathy funded by a Seedcorn grant in 2024.
• Locations: The group operates internationally, having hosted virtual conferences with participants from 49 countries and planning to host the CNE International Conference in Dublin in July 2026.

Cystinosis Ireland serves as the secretariat for Cystinosis Network Europe, acting as a central hub that connects global research efforts and support organizations to advance understanding and care for cystinosis patients worldwide.